Risk Perception,Worry and Satisfaction Related to Genetic Counseling for Hereditary Cancer |
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| Authors: | Cathrine Bjorvatn Geir Egil Eide Berit Rokne Hanestad Nina Øyen Odd E Havik Anniken Carlsson Gunilla Berglund |
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| Institution: | (1) Department of Public Health and Primary Health Care, University of Bergen, Bergen, Norway;(2) Center of Medical Genetics and Molecular Medicine, Haukeland University Hospital, Bergen, Norway;(3) Centre for Clinical Research, Haukeland University Hospital, Bergen, Norway;(4) Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden;(5) Department of Clinical Psychology, University of Bergen, Bergen, Norway;(6) Cathrine Bjorvatn, Department of Public Health and Primary Health Care, University of Bergen, Kalfarveien 31, N-5018 Bergen, Norway |
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| Abstract: | In this multi center study, genetic counseling for hereditary cancer was evaluated by assessing patients’ worry, perceived
risk of developing cancer and satisfaction with genetic counseling. An overall aim was to identify characteristics of vulnerable
patients in order to customize genetic counseling. In addition, agreement between patients’ and counselors’ scores was measured.
A total of 275 Norwegian patients were consecutively recruited, and 213 completed questionnaires before and after genetic
counseling. Patients’ perceived risk decreased after the genetic counseling session. There was incongruence between risk perception
expressed as a percentage and in words. Patients were significantly less worried after counseling. Higher levels of worry
were predicted by low instrumental satisfaction with counseling, high degree of perceived risk of developing cancer and younger
age. In conclusion, counselors met the patients’ psychological needs to a satisfactory degree during counseling. However, patients did not fully
understand their risk of developing cancer. |
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| Keywords: | perceived risk worry satisfaction genetic counseling |
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