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Interest and Beliefs About BRCA Genetic Counseling Among At-Risk Latinas in New York City
Authors:Katarina M Sussner  Lina Jandorf  Hayley S Thompson  Heiddis B Valdimarsdottir
Institution:(1) Department of Oncological Sciences, Division of Cancer Prevention and Control, Mount Sinai School of Medicine, One Gustave L. Levy Place, 1425 Madison Ave, Box 1130, New York, NY 10029, USA;(2) Albert Einstein College of Medicine & Cancer Center Department of Epidemiology and Population Science Division of Community Collaboration and Implementation Science, New York, NY, USA;(3) School of Health and Education, Reykjavik University, Reykjavik, Iceland;(4) Department of Psychology, University of Iceland, Reykjavik, Iceland
Abstract:Background: Latinas are less likely to use genetic services (counseling and testing) for hereditary breast and/or ovarian cancer risk compared to other ethnic groups. Meanwhile, little is known about barriers to genetic counseling among Latinas at increased risk of inherited breast cancer. Methods: A two-phase pilot study was conducted to examine interest, barriers and beliefs about BRCA genetic counseling among at-risk Latinas in New York City and explore the potential for developing a culturally-tailored narrative educational tool for use in future studies. Phase 1 included quantitative telephone interviews (N = 15) with bilingual participants with a personal diagnosis at a young age and/or family history of breast and/or ovarian cancer. Quantitative results informed development of a narrative prototype educational presentation viewed by a subset of participants (N = 10) in Phase 2 focus groups. Results: Despite barriers, including lack of awareness/knowledge, concerns related to learning cancer risks of family members, and concerns about cost/health insurance, participants reported positive attitudes, beliefs and interest in learning about BRCA genetic counseling. Further, significant increases in knowledge were demonstrated from pre-post presentation (p = 0.04). Conclusion: There is an unmet need to educate at-risk Latinas about BRCA genetic counseling. Culturally-tailored educational materials including narratives may increase knowledge about BRCA genetic counseling among this underserved group. The effectiveness of these approaches should be tested in future research with larger samples.
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