|
|||||
|
|
Genetic Counseling/Consultation in South-East Asia: A Report from the Workshop at the 10th Asia Pacific Conference on Human Genetics |
|
| Authors: | Olga Zayts Srikant Sarangi Meow-Keong Thong Brian Hon-yin Chung Ivan Fao-man Lo Anita Sik-yau Kan Juliana Mei-Har Lee Carmencita David Padilla Eva Maria Cutiongco-de la Paz Sultana M. H. Faradz Pornswan Wasant |
| Affiliation: | 1. School of English, The University of Hong Kong, Faculty of Arts, Centennial Campus, the University of Hong Kong, Room 738, 7/F, Run Run Shaw Tower (Building B, Arts) Pokfulam Road, Hong Kong SAR, China 2. Health Communication Research Centre, School of English, Communication and Philosophy, Cardiff University, Cardiff, UK 3. Department of Pediatrics, Faculty of Medicine, University of Malaya, 50603, Kuala Lumpur, Malaysia 4. Department of Pediatrics and Adolescent Medicine, The University of Hong Kong, Hong Kong SAR, China 5. Clinical Genetics Services, Department of Health, Hong Kong SAR, China 6. Department of Obstetrics and Gynecology, Queen Mary Hostpial, The University of Hong Kong, Hong Kong SAR, China 7. Department of Medical Social Work, University of Malaya Medical Centre, Kuala Lumpur, Malaysia 8. Department of Pediatrics, National Institutes of Health, University of the Philippines Manila; University of the Philippines College of Medicine, Manila, Philippines 9. Institute of Human Genetics, National Institutes of Health, University of the Philippines Manila, Manila, Philippines 10. Faculty of Medicine, Diponegoro University, Semarang, Indonesia 11. Department of Pediatrics, Faculty of Medicine, Siriraj Hospital, Mahidol University, Bangkok, Thailand |
| Abstract: | This paper reports on the workshop ‘Genetic Counseling/Consultations in South-East Asia’ at the 10th Asia Pacific Conference on Human Genetics in Kuala Lumpur, Malaysia, in December 2012. The workshop brought together professionals and language/communication scholars from South-East Asia, and the UK. The workshop aimed at addressing culture- and context-specific genetic counseling/consultation practices in South-East Asia. As a way of contextualizing genetic counseling/consultation in South-East Asia, we first offer an overview of communication-oriented research generally, drawing attention to consultation and counseling as part of a communicative continuum with distinctive interactional features. We then provide examples of genetic counseling/consultation research in Hong Kong. As other countries in South-East Asia have not yet embarked on communication-oriented empirical research, we report on the current practices of genetic counseling/consultation in these countries in order to identify similarities and differences as well as key obstacles that could be addressed through future research. Three issues emerged as ‘problematic’: language, religion and culture. We suggest that communication-oriented research can provide a starting point for evidence-based reflections on how to incorporate a counseling mentality in genetic consultation. To conclude, we discuss the need for creating a platform for targeted training of genetic counselors based on communication-oriented research findings. |
| Keywords: | |
| 本文献已被 SpringerLink 等数据库收录！ | |