Psychische Betreuung von Patienten und Angehörigen in der Transplantationsmedizin

During the decision making process and waiting period before organ transplantation patients and their families often suffer from psychological distress. After transplantation a subgroup of patients keeps showing psychological symptoms and also impairments of quality of life. Psychological treatment manuals are often demanded, but are rarely achieved. This study describes the experience with a low frequent (8 sessions/year) therapeutic group for lung transplant candidates. The group, which is based on a cognitive behavioural concept, is lead by a physician (internal medicine), a psychotherapist and a physiotherapist. This therapeutic group has been continuously offered for patients and their caregivers for the past 7 years. About 50% of all patients participated in this program before transplantation, after transplantation only a few patients visited the group sessions. On average 12 patients and 8 caregivers visited each session. One problem for these patients with severe lung-disease was the long distance between patient’s homes and the hospital. This has been the reason for self-help organisations to demand better psychotherapeutic outpatient support for patients and their families before and after organ transplantation.     

国内外器官移植的比较研究

随着外科技术的改进,免疫抑制剂的发展,世界器官移植取得了巨大的发展。近年来我国的器官移植已取得了较大的进展,但要完全与国际接轨,还存在许多急需解决的问题。综述了国内外器官移植发展状况及趋势,分析了器官移植中尚待解决的伦理问题,从社会、伦理、经济、文化、心理、医疗等问题探讨了器官移植的新进展。     

肝移植的伦理学问题

肝脏移植和其它器官移植一起实现了人类长期以来渴望生命再生的梦想,并成为终末期肝病的有效治疗方法。器官移植也面对许多伦理道德方面的难题。供体,特别是活体器官的摘取,受体的选择等,都受到社会道德观的制约。从伦理道德角度来分析如何制定相关的法律法规,成为当前社会关注的热点。从受体的利益、人体科研的道德规范以及相关制度的伦理学要求等方面,较为详细的阐述肝移植伦理学的基本原则。     

Religion and the Catholic Church’s View on (Heart) Transplantation: A Recent Statement of Pope Benedict XVI and its Practical Impact

Heart transplantation is performed on approximately 4,000 patients per year worldwide and is considered the last resort for treatment of end-stage heart diseases. Due to persistent organ shortage, resources are limited, waiting periods are extensive, and patients still die while being on a waiting list for transplantation. The role of all churches and the support of the representatives of the churches are critical for the spiritual wellbeing of patients awaiting heart transplantation as well as for prospective individual organ donors and their families. The supportive role of the Roman Catholic Church and the recent statement of Pope Benedict XVI on organ donation are discussed.     

Giving and Getting: Altruism and Exchange in Transplantation

In the study of organ and tissue transplantation, the focus tends to be on donation. But where there is "giving," there is also "getting:" receiving help. Altruism, helping behavior, and the exchange of benefits have received extensive attention from social psychological researchers. The gift exchange described by anthropologist Marcel Mauss provides a framework for reviewing this social psychological research on altruism and exchange and applying it to transplantation. An overall conclusion is that altruistic donation is not so ethically or clinically problematic, while receiving help has a complex psychosocial context that needs to be acknowledged and given more attention.     

Body Experience After Liver Transplantation: A Body Grid Examination

Living with a donated organ raises not only clinical aspects, such as surgery risks and possible graft rejection, but also questions regarding the psychological integration of the donor organ and the recipient's body experience. Organ recipients need to cope with the transplantation and its impact on their bodies and lives. This study presents findings concerning the psychological outcome of liver recipients and their body experience after transplantation. The focus lies on the psychological integration of the liver by the recipients and on differences in the body experience between recipients of a living liver donation (LDLT) and a deceased donor donation (LTx). To study the subjective body experience and the donor-organ integration, we used the body grid, a modification of the repertory grid technique pioneered by Kelly (1955 Kelly, G.A. (1955). The psychology of personal constructs. New York, NY: Norton. [Google Scholar]). This technique allows both a quantitative and a qualitative research approach. We examined 22 liver recipients (12 LDLT; 10 LTx), matched for age, gender, years since transplantation, and type of liver disease. Additionally, quality of life data were collected using the Short Form-8 health survey (SF-8), along with sociodemographic data, including the current living situation, changes after transplantation, living donor data, and the donor-recipient relationship for the LDLT cases. Correlations between the SF-8 scores and the element distances were calculated. The results depict the recipients’ body experiences after liver transplantation, the psychological integration of the transplanted organ, and correlations between quality of life and organ integration. Differences between the LDLT and LTx group are discussed, as well as implications for improving the treatment and psychological support of the recipients.     

Transplantation: Biomedical and Ethical Concerns Raised by the Cloning and Stem-Cell Debate

Transplantation is becoming an increasingly more common approach to treatment of diseases of organ failure, making organ donation an important means of saving lives. Most world religions find organ donation for the purpose of transplantation to be acceptable, and some even encourage members to donate their organs as a gift of love to others. Recent developments, including artificial organs, transplants from nonhuman species, use of stem cells, and cloning, are impacting the field of transplantation. These new approaches should be discussed with bioethical considerations in mind, particularly the notion of human beings as a unity of body and spirit.     

Introduction to the special issue on “psychological research and practice in organ transplantation”

This paper provides a brief overview of articles in this Special Issue on Psychological Research and Practice in Organ Transplantation. The articles provide empirical information on the psychological adaptation of transplant candidates and recipients, as well as addressing the myriad ethical and clinical issues evident in the field of organ transplantation. Heart, liver, lung, kidney, and bone marrow transplantation for children and adults has increased in frequency in recent years, and the articles address the need for more sophisticated and comprehensive assessment of psychological concomitants. The Guest Editor's Top Ten list of research needs which transplantation psychologists might further address is discussed in this article.     

技术之后是法规和观念的更新--中国器官移植的重大进展

从我国器官移植的历史和现状出发,在器官移植的技术和基础研究有了理观念的更新.这种更新应建立在对器官移植的伦理思考和讨论的基础之上.2003年我国关于器官移植的法规和观念有了新的突破,有关的管理办法和条例也在草拟之中.中国政府和医学界对器官移植始终持积极和慎重的态度,所谓"中国移植和买卖死刑犯器官"完全是别有用心的捏造.     

Psychological management and body image issues in facial transplantation

Facial transplantation, although controversial, is proposed as a major advance in facial reconstructive surgery, with the first partial transplant having taken place in France in November 2005. Although the psychological impact of facial transplantation will not be understood until several procedures have been carried out, this article examines the psychological issues likely to arise with particular reference to body image. A detailed framework for anticipation and management of psychological change is proposed. Pre-operative preparation must include thorough psychological preparation for the patient and their family. The immediate post-operative period is likely to be challenging, and a detailed management plan is proposed emphasising early return to function; subsequent psychological issues including altered body image, anxiety, shame, depression, communication and behavioural avoidance are discussed and a management strategy based on cognitive behavioural principles is proposed for the first post-operative year. Previous discussion frames psychological outcome in terms of complication and risk, tending to downplay the potential advantages of a successful procedure; the focus of this paper is on ensuring psychological adjustment as an inevitable consequence of change.     

Psychological Distress in Caregivers of Liver and Lung Transplant Candidates

Although organ transplantation represents a stressful experience for the entire family, surprisingly little research has focused on the adjustment of caregivers. The purpose of this study was to examine what caregivers report to be the greatest benefits and stressors pretransplant, the prevalence of psychological distress and caregiver strain in pretransplant caregivers as compared to normative populations, and the physical, psychological, and demographic variables that predict distress. Fifty-two caregivers of transplant candidates (28 liver and 24 lung) completed a series of questionnaires, including the Psychosocial Adjustment to Illness Scale (PAIS-SR), SF-36 Health Survey, Caregiver Strain Index (CSI), and qualitative questions about benefits and stressors. The most commonly reported benefit of being a caregiver could be categorized as Helping the Patient, and the most common stressors were associated with Uncertainty/Waiting/Fears. Compared to normative samples of caregivers of patients with Alzheimer's disease, caregivers of liver transplant candidates reported more caregiver strain; there were no differences for lung transplant caregivers. Caregiver social functioning was found to be the only significant predictor of caregiver distress, with those caregivers who report greater distress also reporting extreme and frequent interference with normal social activities. Implications of these findings for psychological interventions are discussed.     

器官移植患者社会心理因素分析

器官移植给晚期疾病的病人提供了第二次生存的机会,但同时亦带来了一系列社会、心理问题.移植患者围手术期常常出现焦虑、抑郁等心理反应,多数受者出院后仍存在不同程度的社会功能缺陷,在健康教育中应重视心理支持及培养受者社会适应能力,充分调动家庭及社会资源,促进受者尽快适应社会和家庭生活,提高生活质量.     

器官移植准入制度迫在眉睫

器官移植在我国正在迅速、蓬勃发展。但是在各种利益的驱使下,我国的器官移植出现严重偏差。一些不具备技术实力的医院违反原则地盲目上马该项目。使国内器官移植生存率与国际相比有相当大差距,并在经济上及器官来源等各方面都造成了巨大浪费。因此,我国亟需配套与器官移植有关的各种法律、法规出台,以规范目前的混乱状况,提高我国器官移植质量。     

关于阴茎移植的伦理问题

随着医学科学的发展,器官移植日趋成熟,不仅使患者延长了生命,更大大提高了生活质量。阴茎移植是器官移植和免疫学发展的结晶,是异体器官移植领域内新的突破,为阴茎缺失的患者带来了新生,对患者心理、家庭和社会有着重大影响。但目前异体阴茎移植刚刚起步,技术尚不成熟,且阴茎是一特殊器官,涉及到的伦理道德问题很多,我们试图从受者、供者、医生和法律等方面讨论阴茎移植所面临的伦理道德问题,希望阴茎移植能真正造福于人类。     

Technological and medical advances: implications for health psychology.

Behavioral telehealth, health informatics, organ and tissue transplantation, and genetics are among the areas that have been affected by advances in technology and medicine. These areas illustrate the opportunities and the challenges that new developments can pose to health psychologists. Each area is discussed with respect to implications for practice, research, public policy, and education and training: recommendations are provided.     

器官移植手术中的医患利益冲突

我国的器官移植手术得到超常发展的重要原因是走了捷径,海归医学人士为我国器官移植手术的开展做出了贡献。但器官移植发展“喜忧参半”。手术背后有医患之间的利益冲突。科学利益和经济利益至上给器官移植的健康发展蒙上阴影。必须加强器官移植的法规建设和管理监督,使我国的器官移植更符合伦理的要求。     

Extending Psychometric Norms for Pre-Cardiac Transplantation Evaluations: The Florida Cohort, 1990–1996

Multidisciplinary pre-cardiac transplantation evaluations determine an individual's ability to benefit from potential transplantation. Psychologists are routinely consulted to perform psychological evaluations and testing to examine the candidate's current functioning and to forecast future functioning in the event of transplantation. The establishment of appropriate norms for psychological tests is an ethical imperative to provide high quality psychological consultations that maximize the utility of information gathered. The purpose of this paper is to present pre-cardiac transplant norms for a battery of psychological tests in a large population of consecutive transplant candidates. Together with other recently published norms on alternative test batteries, these norms allow the transplant psychologist to select from a range of psychological tests that span multiple domains of critical importance including the affective, behavioral, coping, cognitive, and health related quality of life domains. These norms appear to set a standard of practice for the use of psychological tests by a consulting transplantation psychologist.     

Cognitive functioning as a contraindication to organ transplant surgery: Dilemmas encountered in medical decision making

A case is presented to illustrate some of the difficulties encountered when providing psychological consultation to evaluate the readiness of patients for pediatric heart-lung transplantation. The outcome of complex medical decision making can often hinge on information provided by the psychological consultant who is attempting to simultaneously serve the needs of the patient as well as the transplant team. Ethical dilemmas frequently arise when medical decision making is driven by limited health care resources and cost constraints. The utility of cognitive functioning as a variable in pediatric transplant decision making is discussed. Recommendations are made for further work in this area on both conceptual and empirical grounds to guide the integration of psychological information into transplant decision making as health care delivery continues to evolve in the future.     

Acceptance of Illness Among Patients Pursuing Transplantation or Left Ventricular Assist Device

Acceptance of illness is related to better mental health among patients with chronic illness; however, this construct has not been evaluated as part of routine transplantation evaluations. The purpose of this study was to create a brief measure of acceptance of illness for patients pursuing organ transplantation and examine how acceptance is related to distress. Retrospective medical record reviews were conducted for 290 patients who completed a routine psychosocial evaluation prior to transplant listing which included the Illness Acceptance Scale (IAS). Internal consistency for the IAS was excellent (Cronbach’s alpha?=?.92). Illness acceptance was negatively correlated with depression, anxiety, and catastrophizing and was not related to health literacy or health numeracy. The IAS is a reliable and valid measure for patients who are pursuing thoracic transplant or left ventricular assist device. Clinicians may want to screen transplant candidates for illness acceptance and refer those with lower levels to psychological interventions.